Monthly Archives: June 2012

Bye Bye Boobies….Hello Life

27 Jun

Well, I have to thank Riding Shotgun for this opportunity to make a team to Run for the Cure. I have never done it before and I am now ready to walk/run beside survivors and soak up the positive energy without fear of comparison. I just completed the Oakville Hospital run – I owe them so much, all my recent 5 surgeries and all the patience and a ton of scans and X/rays for my broken bones too.

You see, like so many on their own journeys of courage, I endured that horrible journey of surgery after surgery and chemo and that’s what I call a survivor. The future is always an uncertainty since it has not happened yet and the thoughts never leave me but I do know that surviving that year and all that came with it is worth celebrating…..so I want to wear my pink and show my spirit of strength and where I am today.

Now, what to call my team?  It was 1 am and I was deciding on the name:

Positively Pink was a natural name for me – safe, cute, pretty as a nail polish, I could put that on a poster, conservative enough for a doctor to put in the waiting room??? NO , I want to push myself to new comfort zones : I want to push the line to a new edge and learn to be comfortable at that as I talk to everyday people about the effects of cancer and mastectomies and overcoming all the broken parts of me…..it’s part of my vocabulary and I want it to be heard that way. My world did not end with mastectomies – it saved me.

That was it: Bye Bye Boobies…..Hello Life was the name of my new team. Edgy, uncomfortable, fun, and yes, I was going to dare to go there. The song rang in my head as I told my husband – a song from the Bay City Rollers Bye Bye Baby was rewritten at 1.30am as my second wind of energy started writing on my ipad

Bye bye boobies, boobies goodbye

Bye bye boobies, boobies bye bye

Bye bye boobies, don’t make me cry

Bye boobies, boobies bye bye

That’s the one thing I never saw coming

Then I fought it to discover me…..

I just love to be

It hurt just to think about it

Not just me but my family got it

Mark and me, will walk cancer free

Finding friends to get you stronger

The journey kept getting longer, gee

They’d do that for me..

Living life is so much bigger

Sharing that is what I deliver

make a difference, that is me, so…

Bye bye boobies, boobies goodbye

Bye bye boobies, boobies bye bye

Bye bye boobies, don’t make me cry

Bye boobies, boobies bye bye

Bye Bye Boobies saved me – it’s worth celebrating!

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The C Card…

24 Jun

Did you ever have those times when you wanted to pull out that special consideration C card? Times when you were so exhausted from chemo that there was a parking spot for pregnant mums but not for chemo patients? Times when people complained about the line up or a minor inconvenience and you patiently stood there wondering if only they really knew your story…

For the first time since my cancer treatments, I saw the special C card parking lot at Relay for Life: “Survivors Parking Lot” it read…. The best parking in the area, steps from the stage and action!!

When my air conditioner broke down on the hottest summer day, I had to pull the C card to get same day service as the nausea and sweats post surgery made me play that card. And so I invented my own C card. I could play it in my mind!

There were days when I made the effort to look good – gorgeous wig + make up. I would loose my cool on minor things if my coupon had just expired…. I wanted to take my wig off and show the real hurt inside me to explain why I could only shop that day – I wanted to simply pull out the C card.

Then there were the times when a call from the school that my child needed to stay behind for “Study Hall” – he had forgotten to do some homework and these were the rules…. That meant his ride would not take him home, I was in no shape to get him …help – I needed the C Card again.

When I wanted so much to see the Rogers Cup tennis in the middle of my chemo, I needed priority parking on that boiling hot day when I felt so nauseous to start with – where was that C card again? Or when the relatives want to come to the cottage – where did I put that C card?

Maybe there should be the adjusted photo on the card too! As I went to pick up a Purolator package with photo ID, the history of my cancer came out to explain the very different look and the voting station was the same.  Wearing a bright pink cast for the last few months or the immobilizer for my broken shoulder the year before was easier to spot than the nausea or hidden surgical scars that hurt so much more.

So here is my C card for you. I wonder if anyone would give up a seat or a parking spot if they saw that card? I wonder if the policeman who caught you speeding or overstaying your parking meter would feel differently if they saw that? – It’s fun to imagine….. To all those cancer patients out there… this is for you!

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Not All Heroes Wear Capes

17 Jun

We crossed the finish line together – holding hands – 5 km in the humid heat. I was exhausted but proud that I never stopped running. It was just all about pushing yourself to overcome obstacles and the awesome feeling of personal completion. He could have ran ahead, it was easy for him. That was not the point, he told me he was doing the run with me to celebrate being here to do it together. Yes, my awesome husband, a great father is definitely the quiet unsung hero. I worry that he has too much burden but he says he is supposed to protect me – that’s what we do, he says. He can’t protect me from cancer and all that comes with it: the chemo, so many surgeries that he can’t watch anymore, the pain of broken bones and arthritic hands that cannot do ordinary things like opening jars and chopping now. Never complaining, driving the kids, making the meals, working so hard – he’s a surgeon. My rock to lean against when tired, my hero.

What can I do? I can inspire – to show him I am still me, and more. To remind us to  rejoice in what we have and live in the present . We need to soak up the good in the day, let go of the people who don’t want to see life that way and change those who want to.  Inspiration is not lecturing or teaching, it is showing first hand that things are possible, pushing yourself and going outside your comfort zone to encourage others to do the same. It is the courage to break down barriers, allowing people to self reflect and re-think their own challenges. It’s to look at what you bring and be open about it, not to dwell on what you lost. We have found a lot.

Happy Father’s Day Mark

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A lesson from a Tightrope Walker

16 Jun

“Remember the difficult bridges you have to cross in your life and you will get there one step at a time”, he said.

I am not alone in remembering the terrifying days of never-ending bad results at the beginning of my cancer diagnosis. Your path becomes so uncertain, a cliff with nothing beyond it – all things erased. All I had was some hands to hold and trust and my journey was a tightrope – stepping beyond fear and trusting each step was going to take you to the other side.

As mist swirled around Nick Wallenda, he could not see where he was going. Winds blew and challenged him but he recited words of confidence to himself to get to the other side. The positive thinking cards were the words I could hear when fear/ results threatened to knock me off course.

As I saw the intense courage, I realized that in cancer, we have those bridges over troubled water and the song came to my head from my music therapy group. The words needed a change – adapted to inspire those who have to put one foot in front of the other to reach the other side.  Nick Wallenda had 120,000 people cheering him on – I am always surprised at the pyramid of encouragement that happens when someone needs help – so many people cheering us on across our bridge over troubled water……

A bridge over Troubled Water:

When you’re weary

Feeling small

When tears are in your eyes

I will dry them all

I’m at your side

When times get rough

And friends just can’t be found

Like a bridge over troubled water

One step at a time

Like a bridge over troubled water

One step at a time

When you’re feeling down

and the end seems so unclear

the journeys all your own

I will comfort you

I’ll play my part

When loneliness comes

And pain is all around

Like a bridge over troubled water

One step at a time

Like a bridge over troubled water

One step at a time

I see Silver clouds

Open the sky

And let the sun shine down

Your dreams are here today

See how they shine

If you need a friend

I’m walking right behind

Like a bridge over troubled water

I will ease your mind

Like a bridge over troubled water

I will ease your mind

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Mindfulness Meditation

10 Jun

Mindfulness is a concept that I wanted to open myself to and discover ways of slowing down and living in the present. I enrolled in a course for health professionals to help us integrate it into our practice, particularly in palliative care but also for self care and reflection as a tool for life balance.
I am a spiritual person and the “yes” part of me was open to this mindful thinking methodology. I was instructed on the Buddist theory and techniques of meditation and realized that what I could take from it was a version that worked for me.
It is not about learning something until you can perfectly copy it, but to extract the pieces that particularly work for you and integrate them in my life on a regular and healing level.

The principles that particularly worked for me were:

-       The focus on breath – to create silence and focus only on the breathing in and out in order to discard other chaos and anxieties. By practicing this on a regular basis, the mind gets a refreshing time out of complex thinking to focus on a comfortable presence of breath. This can be done sitting in the waiting room for results, in the elevator, at work or in a painful part of your treatment.

-       The depth of focus on the present is very significant. Whether you choose to sit with eyes closed or gently open on a soft distant object, whether you are sitting upright or supported, or in a gently rhythmic walk, the mind must focus entirely on the present. We must engage it to only see the now, both physically and emotionally. We must discard the past because it has gone and to stop thinking of the future since it has not yet happened and focus on the present moment.  We sometimes need reminders to look at what is around us, reciting statements of positive feelings and inner compassion.

-       Peace and inner calmness: the permission to spend time on this exercise,away from other worries or deadlines is important. Finding that place in your head where time stands still and kindness and non-judgement takes over is wonderful. Reinforcing this takes time and repetition.

-     Disconnect thought from feelings by noticing, acknowledging and letting it pass. The key to this is noticing the thought before the associated feelings take over. Reframing the feelings is another step in behavior training but in meditation, simply returning to the present breath is the focus.

From this mindfulness training, it was clear that your mind can be trained to offer compassion to yourself and others without draining your own emotions. This practice and the positive energy and radiance of giving of emotions we discovered was significant. This was one of the skills that I wanted to take with me and share.

Wellspring has great courses in mindfulness meditation. I highly recommend them.

Meditation

I want to tell you- a place that I found

A space in my head, calm with no sound

Its all about breath and finding the Now

its easy to go there if you know how

Decide to take time out of your day

To pause and reflect, keep tasks at bay

acknowledge the thoughts as they appear

return to your breath, not to the fear

Memories surface, they are part of me

controlling the feelings is really the key

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Growing Old is a Beautiful Thing

2 Jun

Some may complain of the aches that come with arthritis or that their skin is more wrinkled or hair more grey or thin. Growing old is a privilege that some forget until it is nearly taken away in the prime of life. The shock that comes with that cannot be underestimated. We are not ready for that and suddenly the unfairness of cancer pierces our life. Along with so many emotions comes anger. I was asked what the anger was …. It was not at anyone or even at the “why me?” aspect , those were never an issue, but, I had anger that no one could see that their life too could be blindsided and they did not want to see that. Of course, now, I understand but am fulfilled by those whose lives I can touch and recalibrate to make us all realize how special today is.

As I was driving to work the other day, I saw one of my favorite older patients – always cheerful and smiling. As I stopped to say Hi I asked where he was going.  He told me he was going out with the same friend to have their weekly breakfast – he calculated they had eaten over 2000 eggs over the decades together and I told him that I want to be able to say that too one day.  I always live in the present and cannot put myself far into the future but remind people that growing old is a beautiful thing.

Growing Old is a Beautiful Thing

I want to grow old, see wrinkles and say

Remember the cancer that long ago day

My feet will have walked through vineyards in France

Snowboarded Vail and dressed up to dance

Life’s an adventure so when I reflect

My list will be full with everything checked

I’ll parasail, zip line and do things that I fear

You never know how your path may now steer

Pause in the day, see the beauty of now

Enrich and enjoy don’t forget how

There’s always a way when spirit is strong

Inspire and give back is the way to move on

Take opportunities as they unfold

So fulfilled I will be, when I get old

As people are aging they often complain

the beauty of living I remind them again

Those years are a privilege not to forget

That cancer hit me but will not take me yet

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