Monthly Archives: August 2011

Entering the Pleasure Zone: Glow and Canada

30 Aug

Here I am at the rental cottage along the St Lawrence in the 1000 Islands, hiding in the musty and dark bedroom while fighting off jetlag with a hearty infusion of nap – but my head is still buzzing and it won’t let me sleep. Why? Cause I wanna write this blog post.

Two fabulous things happened this week.

(Oh my goodness, I feel like I’m floating up and down, up and down. It’s from the dock. You know, sort of like when you step out of an elevator and can still feel the motion? Well I just came in from the dock and crashed into bed – and my world is going up and down, up and down. )

First fabulous thing to happen this week: Glow magazine.

A long, long time ago . . . okay, several months ago, but even that feels long to me . . . I was asked to write an article about what it’s like to be part of the FCT community. Now if you’re reading this post then I assume you already know what it’s like to participate in this unique forum. But my article talks about the transition I’m sure so many of us experience; from the shock of diagnosis, the initial desire to hide, and the eventual ‘coming out’ to a community of fellow fighters – finding support and joining the conversation. Honestly, I think sharing the experience, having a place to express what’s going on . . . I think it’s crucial in coping with the difficulties that follow a diagnosis. Stress busting through online support. And writing, commenting, connecting – those are icing on the cake to better peace of mind.

So it was really exciting to write this article. My first piece of published, hardcopy work.

Geez, I do love to write. Writing and sharing and connecting with people – that’s where the joy comes, you know? That’s my pleasure zone. It’s a dream of mine to be able to write for a living. And this article (hope I’m not going on too much. Frankly, it’s this community that anchors the article. So without the comments and conversations I’d have very little to say – your reactions and your input, that’s what makes this site work.), this article is a great start.

Anyhow, it’s on magazine shelves now. I know for sure Shoppers Drug Mart carries it, cause I just went out and picked up about five copies. Very exciting indeed. (Though very strange to flip through a glossy paged mag and see a picture of myself – do I look like that, really? smiling back as my words fill the page.)

Second fabulous thing to happen this week: CANADA!

WOOOHOOOOOOOO!

Aiiiii!

Woooot! Woooot! Wooot!

And a whole lot of happy dancing. We are here. We have arrived. After an entire weekend of travelling and a few nervous moments before the big immigration for Zsolt, we have entered the country and are ready for this next life. What that exactly entails still remains to be seen. It’s kinda like that moment in The Graduate where they are on the bus as it drives away from the church, and you can tell as the camera lingers on them that a question is forming in both their minds: “What comes next?”

I don’t know. But whatever it is, I’m so pleased to be home. There is, as you know, no place like home. And hanging at the cottage this weekend is an incredible reminder of how much I love this country. The water, the animals, the outdoors – ah! Wonderful.

And now that I’ve gushed, I think my pillow is calling for me. “Catherine, come and sleep on me.”

Must . . .not. . . fight . . . it. Must . . . fall. . . asleep. Must. . . save. . . blog . . . post. Must . . . stop. . . typing.

Good night, good day, and have a wonderful labour day weekend.

Pssst! Check me out on twitter (follow) and facebook (like). To read posts-as-they-happen, plus the start of my breast cancer journey, visit www.bumpyboobs.com.

Posted in Uncategorized, facingcancer.ca, healing, life after cancer | Tagged , , | 6 Comments

The story you never want to hear – in memory of Jack Layton

22 Aug

You know I turned on the computer this morning just for a little entertainment before I started the big pack for Canada. We’re moving this week, finally, after over a year of planning and longing to be closer to my family. On the day I found out about my breast cancer, I said to Zsolt  – “I want to go home.” But life isn’t always that straightforward. And so we waited. And filled out paperwork. And defended a thesis. And visited his family in Hungary.

But now. . . now we are going home – Canada is calling.

So I turn on the computer this morning for a little entertainment, logged into Twitter – and what do I read? The crushing news that Jack Layton has passed on. This is not a political thing, not for me . . . it’s about surviving and fighting and being inspired by stories like his – fighting through the disease for a cause he believes in, and not letting cancer stop him for one moment from living and loving life.

It never helps when people tell you they know someone who passed away from Cancer. It hurts. It’s scary. It’s the story you never want to hear. And perhaps today – maybe like many of you who are watching the news or flipping through the internet – maybe Jack’s passing scared you like it did for me this morning.  But then I read his ‘Letter to Canadians’ and decided maybe it’s not worth being scared today. Sad, yes. Hopeful and determined, always. Scared . . . not today.

I’ll leave a slice of his letter below – because it’s touching and it’s for us. The rest you can read for yourself if you like. I’m sure in about ten minutes it’ll be all across the internet. Jack’s message:

“To other Canadians who are on journeys to defeat cancer and to live their lives, I say this: please don’t be discouraged that my own journey hasn’t gone as well as I had hoped. You must not lose your own hope. Treatments and therapies have never been better in the face of this disease. You have every reason to be optimistic, determined, and focused on the future. My only other advice is to cherish every moment with those you love at every stage of your journey, as I have done this summer.”

Which is another reminder of why I’m going home and why Canada means the world to me. For a year I have fought, and this summer I’ve rested. Now I want to have family near – to go for tea with my mom, dance with my friends, tease my little brother, listen to Dad’s fish stories, and meet my older brother’s girlfriend while he cooks us some soup. I want to visit my grandmother too. Every moment is to be cherished, and every day is an opportunity. So let’s be determined today, okay? Let’s be full of hope and ass-kicking gusto.

I’d like to say that my heart goes out to Jack Layton’s family. And I wish them all the love and support possible in this difficult time.

And Canada – I’m coming home. Oh, I’ve missed you terribly. I am coming home this very week. How wonderful is that?

Posted in Uncategorized, cancer, finding support, healing, life after cancer | Tagged , | 2 Comments

Scandal and the bikini boob (i.e. I’m on vacation!)

17 Aug

This week I’m off to Greece – actually I’m in Greece at this very moment, and since my accommodation is ‘cheap and cheerful’ it has no internet access. So I thought, instead of skipping this week’s post, I’d let you know why I was feeling really fine just before leaving.

It has to do with wearing a bikini, despite missing my right breast.

“A binki?” you ask “What about the scar?

“Well, what about the scar?”

“What about the missing breast?”

“Well, what about the missing breast.”

But instead of extending this conversation, let’s just jump to the post – updated last week, and hopefully still relevant as I’m strutting my cancer-free stuff on the beaches of Corfu.

Earlier this summer as we set to leave England, I spread my bathing suits and bras across the bed (accumulated over about six years) and began to say goodbye. Goodbye slippery pink cups, goodbye plain white t-shirt bra, goodbye your clever push-up, goodbye string bikini top . . . goodbye. Everything went in the bin (or the charity bag, depending on condition) except for my ancient O’Neil red string bikini – and not because I could wear it to the beach this summer . . . cause really, those triangles are small, but rather because of the memories.

Which was, if you consider it, what the pile of lingerie also was – memories. Memories of boobs. And once the deed was done, I had myself a good cry.

But today was lovely. Today-today-today I bought a string bikini. Not a bandeau wrap across the chest, those they are nice too post-mastectomy (particularly since I bought two for eight pounds at Matalon, though I think, perhaps the price is reflected in the quality of my butt-in-bikini, which is why I was on the hunt today for a new, discounted, end-of-the-season quality designer suit.).

Oh, I feel so naughty. Girls with only one breast aren’t meant to wear string bikinis. At least, according to the post-mastectomy land of lingerie product catalogues we aren’t. And I can see the point. Firstly, if we could all get away without the false-breast pockets they would be out of business. Secondly, most women don’t have tiny boob(s), and the difference between right and left would be like staring at a single hill in the middle of a plain. Something like that giant red rock in Australia.

But after going shop to shop and not finding any bandeau style, I just said, “screw this” and tried on a few cuts I never imagined acceptable.

Gosh, I’ll tell you what. If I still had both boobs (say I had reconstruction, or old rightie magically grew back), I’d have scandalized Lake Balaton this summer with my risqué so-damn-near-to-the-nipple outfits of string and fling and bikini hotness, it would have been awesome.  And while that hasn’t happened, I have happily noticed that despite having a neat and tidy scar running across my right chest, it is, one year post surgery, less noticeable.

So I put on this striking blue triangular thing (O’Neil has such fine quality suits) where the area isn’t quite so close to the nipple (which is good, because I’m down one of those) and BAM – Sexy bathing suit Catherine has returned from her summer of cheap, Matalon frumping. My ass looks great; my eyes are popping; and best of all – BEST of all – my boob, while looking small, is not strikingly missing.

Okay, if you know it’s missing, than you aren’t going to miss the ‘missing’ness.   (Am I misusing the miss?)

And I know it’s not cool to brag. Hey, my body isn’t 22 anymore, so yes, I’m fully aware of those cellulite jiggles and mystery circles rippling out from my thighs. But fuck it. I feel pretty. I feel like all those stupid bras and bikini tops last May thrown into the bin (or charity bag) weren’t discarded because I can’t wear them . . . they were tossed because I’m a spanking new woman who needs flattering, lovely clothes.

After all, it never hurts to feel good about yourself. And I never imagined a triangle bikini would ever again make me feel so freaking good.

This post is so absurd. I know it’s all ‘me, me, me’ but I’m excited. It’s like being told you can wear miniskirts again after thirty five (not my rule, I took it from ‘What Not to Wear’ so if you don’t like it, please refer to Stacy and Clinton), if you’ve ever been inclined to wear miniskirts – which, to Zsolt’s disappointment, I’ve never been.

Anyhow. Maybe I look just like any girl on the beach. But Zsolt thinks it’s beautiful too, so there you go.

Happy days, and just in time for my trip to Greece. Boyah! Great stuff. Sorry for so much self-indulgence, but I really needed to cheer.

And to top off this lovely day. Zsolt found a brand of clothing that suits his tall, lean frame and actually makes him look like . . . like a man. Like, a hot man. Like I could just grab him with both hands and sweep him away to never, never land. His outfit, in my opinion, is money well spent.

(Whew! Just had a wee scare. I had dropped my computer-drawing pen and thought it fell behind the radiator, so started groping the ground underneath and stuck my hand right through a thick spider web. Gross. Thankfully, with a second look, the pen actually only fell behind the computer screen. But still, my hand is totally grossed out. And I bet the spiders aren’t too pleased either.)

Pssst! Check me out on twitter (follow) and facebook (like). To read posts-as-they-happen, plus the start of my breast cancer journey, visit www.bumpyboobs.com.

Posted in breast cancer, cancer, healing, life after cancer | Leave a comment

Sex after cancer – how we coped with the difficulties

10 Aug

You know what I don’t talk about – or at least, what I don’t blog about? Sex.  This is partly out of respect for my husband, who was an incredible gentleman during the past year, and partly out of the fact that my grandmother reads each and every entry of my Bumpyboobs.com blog.

However . . .

Grandma doesn’t read this blog.  (I never gave her the link, otherwise she’d totally be reading this right now.)

And my husband understands that when talking about recovery and moving on, essentially when talking about life after diagnosis  – sex matters.  While during treatment it was more than a slightly difficult subject (for reasons I’ll explain below), now we’re in our summer of healing, which includes (te-he) sexual healing.

But I’ll spare you the HBO drama details. No risky scenes of dropped clothing and ferocious passion (Though yesterday after that glass of wine and a night to ourselves, there was, I’ll admit, a copious amount of both – but you know what, it hasn’t come easy. No sir re bob. Not at all. It’s taken heaps of effort to recover from what was, essentially a very difficult year sexually speaking*.) Instead I’ll write you two sections.

1) Ways in which cancer messed up my sex life.

2) Ways in which I took my sex life back.

So, first: Ways in which cancer messed up my sex life.

Surgery.

Often times the solution to cancer is to cut-it-out, meaning often times, the body undergoes a drastic loss. I was lucky, the cancer was in my breast, and as far as invasive surgery goes, so the nurse told me, this was the best cancer to have. (Wohoo?) All I lost was my right breast, many women lose much more.

But nevertheless – it was my right breast. For ages it was difficult to see the scar. I didn’t trust that part of my body. I was terrified of lymphodemia. I wasn’t sure how to dress. I threw away my bikinis. And if my husband’s hand would even hover above the area – swap­I’d swat it away like a fly. No touching. Because touching meant I dipped into instant depression and rumination over cancer, and our lives changing, and the threat, and the treatment, and will anything ever be the same again?

No touching.

It took a while to recover, and to be honest, I feel like maybe just now I can allow my husband to freely explore that side of my body and not flashback to the chemo or surgery.  It’s gotten better, but it’s also taken time.

Exhaustion and Depression.

This is like a game of duck, duck, goose. Exhaustion is walking around the circle of possible reactions, hand above their heads, and we all wonder who she’ll pick – then bam! Exhaustion picks Depression, and Depression is up and running, chasing Exhaustion in a circle – running, running, running – and Exhaustion makes it to the open space, sitting down untouched! So now it’s Depression’s turn to pick a goose . . .duck, duck, duck . . . then guess who he picks since chemo is tomorrow and everything starts again? That’s right: Exhaustion.  They’re up and running again.

Well that long winded description was basically to say that I was tired. Dead tired. No matter how many times my husband might have poked me in bed, or kissed me on the neck (when the depression hit hard, I didn’t even understand how he could look  at me with that thought on his mind. Ugh. Chemo Catherine wasn’t like your average 28 year old. She looked sick. Sick and bald and sick) . . . my answer was a constant and firm: “No.”

The Narrowing.

Now this is a tricky topic. Who wants to talk about their vagina (who wants to say vagina?) narrowing. But it happened. Who the heck knows why? Why does chemo narrow a woman’s downstairs passage?  Two things happened. First, menopause struck and I dried up like the Sahara. Second, I tightened.  Dry and tight. Guess how fun sex becomes when that happens?  It was like trying to squeeze your head through a children-sized turtleneck.

The pain was sharp – in fact, it’s still sharp today – seven months post chemotherapy, and every time there is that moment of supreme discomfort . . . only now I know it will pass. Back then I thought it might never stop. That’s a horrible feeling.

So my shop closed up for about five months straight.  Also coinciding with some of the most difficult days of our relationship. With the stress of cancer, the difficulties of chemo, the lack of energy and the absence of love making . . . well, it was challenging.

Now for the happier list! Ways in which I took back my sex life.

Actually, I’m no longer in the mood for listing things. I’ll just tell you straight. Firstly, we waited.

Also, once chemo ended, I decided to try some vitamin E. Now doctors can prescribe a variety of things to help the juices flow – there’s even a forum conversation on facingcaner.ca, so do go check that out. But for me, I’d had enough of the lubricants and certainly didn’t want any more drugs. . . so I combined vitamin E with a dilator. And step by step, with a tolerable level of pain, the dilator was expanded over a month or so.  Ugh. I cringe at the thought of my grandmother – or anyone’s grandmother – reading about my expanding lady part.

Whatever!

And finally we used the ultimate ingredients: patience and persistence. After five months of no action, even with the dilator helping, things were madly uncomfortable down there. But we tried again and again (with several instances of me saying, “Stop!” because it was really too much), and the discomfort began to last shorter periods of time. Now, here in August, it’s only in the first moments that I feel that pain. . . and I think it’s worth enduring for the fun that comes after.

And that’s where we are today, having fun, thank God, after months  of really having to try and persist and work to regain our sex life.

Frankly, I was lucky. Not all partners are able to cope with the intensity of chemotherapy or cancer  . . . and I’m guessing none of them initially realized that all ‘fun, slippery times’ will be cleared from the table till recovery starts to happen. I’ve heard of relationships which have crumbled . . . I’ve heard of relationships that have strengthened.  Also, I’ve heard of women who had sex all the way through chemotherapy – so good for you are one of them.

And if you are in the middle of a sexual slump, and feeling guilty or frustrated, all I can say is this: hang in there, this isn’t your fault and any good partner will keep that in mind. Let the body react as it needs, and recover at its own pace. Then, when you feel ready talk to your doctor about options. Maybe buy yourself a dilator (with vibration for added blood flow) and get started on the project.

Right – sitting up from the computer – enough sex talk. It’s not even breakfast yet and I still haven’t had my cup of tea. But if you have anything to add, or any advice to give, do take this chance to say something. You never know who you may help. I was certainly scanning the forums when this problem first developed, and it was a relief to learn that other women had similar issues.

Now. Time for tea.

Have a lovely day.

PS. A big thank you to my husband for kindly allowing me to discuss this intimate aspect of our lives. While it is intimate, it’s also so universal. Thanks, babe. You are an incredible man.

*Never thought I’d write a sentence like that in my entire life.  Sexually speaking.

Posted in cancer, chemotherapy, facingcancer.ca, healing, life after cancer | Tagged , , | 28 Comments

Getting anxious over the stress of stress

3 Aug

Zsolt just walked into my makeshift ‘office’ in his sister’s old bedroom here in Pecs, Hungary, and asked if I could take a break from my work. (Quick aside: this isn’t work. I love doing this – writing, blogging, social mediating, and all the while enjoying the breeze through this large open window before me and listening to the sounds of the neighbourhood – mostly dogs, a few cars). And since Zsolt never walks into my makeshift office asking me to take a break, I immediately listened to the man.

“I sent you an email,” he tells me.

Email is opened.

There in my inbox is an article link.  It’s a piece from the Huffington post by David Katz, M.D. on the “super six” – his list of factors to help prevent recurrence (or occurrence) of cancer. With the inevitable reminder that “lifestyle practices are the ship and sails, but there is still the wind and waves”, which I thought was a rather well-put reminder. Do what you can, but there are no promises. However, we can at least do what we can.

Anyhow, here are the six factors suggested by David Katz which need attention when trying to fight cancer: feet (exercise), forks (diet), fingers (no smoking), sleep, stress, and love (gotta love the love).

And then Zsolt says to me: “You’ve got all of those covered, except for your stress.”

Ah! Nailed.

Before diagnosed with cancer I was stressing over ‘where will we live’ and ‘where do I belong’ . . . then came the cancer (a stress-pie in itself) . . . and Zsolt’s application for residency in Canada . . . and now that we’re finally here in Hungary, enjoying our summer of time and leisure, and I’m stressing over our move to Canada and how things will go at the border and how we’ll settle into adulthood in another new country (new for Zsolt, and I’ve only ever been a student in Canada, so this will most certainly be different).

Now I realize this post is essentially a written rant on worrying about worrying. And Zsolt has just told me that he’s getting worried over my endless list of concerns (poor man, I don’t want him to be dragged down). Plus, I’d hate to leave you with the impression that all day, everyday my brow is furrowed and I’m ruminating over the next difficult hurdle (because really, and I know this, every hurdle is surmounted whether you want to climb that obstacle or not. During chemo I thought, “this is impossible” and yet it’s done. You likely know that feeling.) but it’s just a realization reminder: In the words of my husband, “Catherine, you need to relax.”

This entire summer was constructed with the idea of relaxation, but it seems location and convenience alone are not enough to master the art of calm. My mind still picks on the wriggling points of uncertainty – Will we have problems? Is the paperwork arranged? What will come next?

Same thing it’s been doing ever since I was a kid.

However, I also learned a new trick this past year. Talking about said stress – writing, blogging, journaling, releasing – I don’t know how that factors into the ‘super six’ but for me personally it’s a great help. I let out the pressure . . . which is a start.

Anyhow, with the conclusion of this post I will try and not worry any longer about worrying. Instead, I’ll google meditation classes in Ottawa that I can slip into once we arrive in the country.  Like all other aspects of that super six (particularly diet and exercise) I’ll feel better – physically, mentally, emotionally – once this issue is challenged with some proactive behaviour. And in the meanwhile, maybe I’ll go for a walk. That’s meant to be stress relieving, right? Never mind the barking dogs – they’re all stuck behind their fences. Everything will be just fine. (As she breathes in and out, now anxious to leave this post behind.) Everything is fine.

I need a cup of tea.

Posted in facingcancer.ca, healing, life after cancer | Tagged , , | 2 Comments